Carepartners/ Caregivers & Families
Aphasia impacts the lives of everyone connected to the individual with aphasia. Here are resources specifically for carepartners/caregivers and families or friends.
A large collection of educational and supportive resources for caregivers and families of those living with aphasia. Here is their free, in-depth Aphasia Caregiver Guide.
Advice for self-care to prevent feelings of caregiver burnout while caring for another's well-being after a stroke.
The 14.5 minute video linked above was created specifically for families/friends of people with aphasia. It provides essential information about aphasia as well as practical communication tips (SCA™) to support effective and meaningful conversations. This short video is a companion to the Aphasia Institute's free pamphlet (digital and print versions available) called “Does Your Family Member Have Aphasia? What to Look for and What You Can Do.”
Women's Carepartner Grief Support Group
This community-led support group generally has 4-8 attendees who are full time carepartners to spouses/partners with aphasia and various other neurologic disorders. They talk about the various challenges and successes of being a carepartner. The facilitator occasionally brings grief resources and discussion topics and provides an opportunity for members to express their experiences and feelings in a safe place with others who share this unique journey. They cover everything from changes in couple intimacy, to anger at the medical system, to favorite things about their partners, to laughing together just because it feels good to be with people who "get it".
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Meetings are on Zoom every other Wednesday at 6:00pm PST.
To join, email Gabrielle Gardner: gsgardner5@gmail.com
A nonprofit organization delivering support services for people with aphasia, their families, and friends. Join a free online meeting (enter "caregivers" into search bar) to spend time with other caregivers as they share successes and challenges of their aphasia journey with their loved ones. There's also a Private Facebook Group for carepartners and friends.
Ever wonder what it's like to live with aphasia? This website gives you the chance to engage in activities that let you experience what it sounds and feels like to live with aphasia. There are listening, writing, reading, and speaking tasks that also provide explanations for the errors that happen. It can be a helpful exercise to better understand what your partner, family, or friend may experience in their daily life with aphasia.
Using the above link, scroll down past the stroke information for tips and resources for caregivers. There are also tools for finding family care services by state and for looking up state caregiving profiles describing unique policies and support programs. Resources are provided in multiple languages.
Provides caregiver guides, communication tips, and checklists. You can sign up to receive their monthly e-newsletter for additional resources, news, and stories.